Friday 21 November 2008

Sheila has another of her gas chamber sessions this morning - an hour of high dosage oxygen treatment in a machine similar to those used to treat divers suffering from the bends. This follows yesterday's physiotherapy session, plus an hour of tai chi on Mondays, and her physio has given her a set of exercises she has to do twice daily. All this is in an attempt to delay (it probably can't prevent) the onset of the symptoms of the condition which was diagnosed earlier this year.

I say diagnosed, but that is perhaps slightly too strong a word. The consultant that she had been seeing locally and the consultants she saw at King's College Hospital in London were unable to say for sure what the condition is. They believe that it is one of two - either corticobasal degeneration (CBD), a Parkinson's disease variant, or primary lateral sclerosis (PLS), a variant of motor neuron disease. Apparently the two conditions exhibit very similar symptoms but are caused by the deterioration of cells in different parts of the brain. Sheila, bless her, presents most of the symptoms common to both conditions, together with some which are indicative of CBD but not PLS and vice versa. Plus she doesn't present some of the usual symptoms for either! The consultant, when we saw him in the summer, said that he was 70% sure it was CBD. It is actually almost an academic matter as the treatment (there is none) and the prognosis (it won't get any better and will slowly get worse) are the same for both conditions.

Although both the consultant and the physio have told Sheila that they have seen signs of improvement, the cynic in me thinks they are either trying to boost her morale, which would be foolish, or they are mistaken. I incline to the latter. I am confident that over the last six to nine months I have actually seen a deterioration, but maybe that's just me being pessimistic. One good thing is that Sheila seems to have come to terms with the problem and she remains remarkably cheerful despite not being able to do a lot of things that she would dearly love to do.

On a more cheerful note: one of the first Christmas cards we receive each year is from Gary and Wendy Dempsey in France. This year, Gary has really got ahead of himself as we received their card yesterday!

The sunset yesterday was one of the most glorious I have ever seen. The red and gold covered nearly a quarter of the sky, the red being a really deep, rich colour - very intense. Unfortunately, it was on the way back from the hospital that we saw it and there was no way I could take a picture. The late evening local news programme on BBC did show a couple of viewers' shots, so magnificent was it.

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